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PRODID:-//Memento EPFL//
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SUMMARY:Patients and Researchers\, let's all seek! Interdependence as a wa
 y of healing
DTSTART:20220408T140000
DTEND:20220408T150000
DTSTAMP:20260916T011729Z
UID:a3e6f2b322800452b5ef05780473307fac7669309d4ce88a63c3c165
CATEGORIES:Conferences - Seminars
DESCRIPTION:Marie-Caroline Schurr\, Expert Patient\nSuffering from a genet
 ic orphan disease\, juvenile hyaline fibromatosis\, I have learnt over the
  years to know and understand my disease\, its evolution\, the care to be 
 given to my body but also how much my physical limits are vectors of innov
 ative forces. As an expert on my disease\, I have been confronted with it
  for 13\,500 days\, visited dozens of hospitals in France and abroad\, and
  met hundreds of doctors of all specialities. Operated and hospitalised re
 peatedly\, the operating theatre and hospital corridors no longer hold any
  secrets for me. My illness made me discover the galaxies of science and m
 edicine.\n\nWe are all researchers. You perfect your scientific knowledge
  of the disease\, I try to tame its language. Illness becomes a vector of 
 unique advances that we cannot hide. I seek\, you seek with me\, an excit
 ing teamwork! The strength of an interdependence where each person puts h
 is or her skills at the service of the other. I take this opportunity to 
 meet you as a chance. Thank you for coming on this adventure with me!\n 
LOCATION:SV 1717 https://plan.epfl.ch/?room==SV%201717 https://epfl.zoom.u
 s/j/68830944638
STATUS:CONFIRMED
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