Swiss Personalized Health Network (SPHN): Public Event

To introduce the topic of Personalized Health and more concretly the initiative SPHN, a public event is organised on August 28.

Tentative programme:

13h45 Coffee and registration
14h00 Welcome & Introduction, Daniel Scheidegger, SAMS
14h05 Session 1: About SPHN

• Mission, goals, and structure of SPHN, Peter Meier-Abt, SAMS
• Ethical Framework for Data Processing, Effy Vayena, U. Zurich

• General Consent & Human Research Act, Franziska Sprecher, U. Bern
• Data Protection

• PH from a patient perspective: Karin Holm, Patient Advocates for Cancer Research & Treatment and David Haerry, Positivrat Schweiz, EUPATI
• PH in oncology, Olivier Michiélin, CHUV
• PH in rare diseases, Matthias Baumgartner, U. Zurich, Rare diseases initiative
• Technology assessment, Alexander Navarini, USZ (TA-SWISS Study)
• Public health and regulator’s perspective, Pascal Strupler, Federal Office of Public Health